The Academy is developing a programme of public dialogue workshops, exploring the issues arising from future data technologies that use or collect health information.Scoping
Use of patient data in healthcare and research
There has been much public dialogue focusing on the current use of patient data, but less has been undertaken exploring how future data driven technologies might impact on this.
A recent report by the Royal Society and the British Academy highlighted that very few studies have investigated attitudes to new and future uses of data. In addition, while some studies have explored potential near-term applications of data technologies, none so far have considered future worlds enabled by data.
To address this, the Academy is developing a programme of public dialogue, with Ipsos MORI and Understanding Patient Data, with the aim of exploring public, patient, researcher and healthcare professionals’ views about new and emerging data driven technologies that use patient data in healthcare and research.
The report of the public dialogue will be used for an Academy policy project to develop a set of principles which can be used to ensure that the use of patient data in developing new technologies and their subsequent application reflect public and patient perspectives.
 The Royal Society & British Academy (2017). Data governance: public engagement review. https://royalsociety.org/~/media/policy/projects/data-governance/data-governance-public-engagement-review.pdf
- Professor Carol Dezateux CBE FMedSci, Professor of Clinical Epidemiology and Health Data Science, Queen Mary, University London (Chair)
- Dr Kambiz Boomla, Clinical Senior Lecturer in the Clinical Effectiveness Group, Queen Mary, University of London
- Professor Mandy Chessell CBE FREng, IBM Distinguished Engineer, IBM Master Inventor, Visiting professor (University of Sheffield)
- Professor Bobbie Farsides, Professor of Clinical and Biomedical Ethics, Brighton and Sussex Medical School
- Professor Susan Michie FMedSci, Professor of Health Psychology and Director of the Centre for Behaviour Change, UCL
- Professor John Naughton, Emeritus Professor of the Public Understanding of Technology, Wolfson College, University of Cambridge
- Dr Amara Nwosu, Medical doctor and Clinical Lecturer in Palliative Care, University of Liverpool
- Professor Jill Pell CBE FRSE FMedSci, Director, Institute of Health and Wellbeing, University of Glasgow
- Professor Diana Rose, Professor of User-Led Research; Co-Director Service User Research Enterprise, Health Services Research, King’s College London
- Jonathan Sellors, Legal Counsel and company secretary, UK Biobank
- Professor Lionel Tarassenko CBE FREng FMedSci, Professor of Electrical Engineering and Head, Department of Engineering Science, University of Oxford
- Dr Mary Tully, Director of Public Engagement for Connected Health Cities, University of Manchester
- Professor Dame Til Wykes DBE FMedSci, Professor of Clinical Psychology and Rehabilitation, King’s College London
Communications and Engagement Manager
Tel: 020 3141 3203View staff bio