The Government has published their new Life Sciences Sector Deal
In response to the new Sector Deal, Professor Sir Robert Lechler PMedSci, President of the Academy of Medical Sciences, said:
“I am pleased to see that the new Life Sciences Sector Deal largely supports the conclusions in the Academy’s latest report on the future use of patient data by new technologies. This project engaged the public, patients and healthcare professionals and highlights the importance of building trust and confidence around the use of patient data by health technologies.
“Patient data can be used to benefit patients, the NHS and wider society by supporting individual care, health services and planning and research and innovation.
“I welcome the Sector Deal’s proposal to develop a framework to guide trustworthy and safe access to patient data so that the NHS can share in the benefits of making patient data available, and encourage the Government to align thus with the Academy’s principles on how patient data should be used in line with public and patient expectations.”
“Our principles recommend establishing robust and transparent data access agreements that can help to ensure that the benefits of using patient data are shared with the NHS. I hope that the Sector Deal’s proposal to introduce model agreements that can guide the NHS, developers and researchers in this area reflect the values and expectations of wider society.”
Following the publication of the next stage of the Life Sciences Sector Deal and the forthcoming updated code of conduct for health and care data-driven technologies, Understanding Patient Data, the Wellcome Trust, the Association of Medical Research Charities and the Academy wrote to the Secretary of State for Health and Social Care to highlight the importance of ongoing and active engagement with patients and the public on use of new health technologies.
See here for more information on report Our data-driven future in healthcare
See here for our President's response to the Life Sciences Industrial Strategy
Joint letter to the Secretary of State about our data-driven future health care