09.00, Wednesday 22 January 2020
On Wednesday 22 January 2020, Health Data Research UK, the Academy of Medical Sciences and the Collaboration for the Advancement of Sustainable Medical Innovation (CASMI) ran a joint event entitled ‘Realising patient and NHS benefits from health and care data: from policy to practice’.
Attendees at the event included patient and public representatives, colleagues from the NHS, industry, academia and policy sectors. The event was also live streamed to ensure anyone with an interest in this important area could hear the talks.
Watch the recording of the event here: https://www.youtube.com/watch?v=B8SgRIxcNvc&feature=youtu.be
The purpose of the event was to ensure that we derive appropriate value for all from the use of health and care data. To do so, the meeting brought together key stakeholders to share perspectives, and to define practical steps that could be applied by organisations that manage and hold UK health data and/or provide research services. Discussions considered approaches to realise the breadth of benefits – from using data to develop new medicines or devices through to financial reimbursement to the NHS for access to and use of health data.
The workshop aimed to produce a practical framework that can be used by the newly formed Health Data Research Hubs to enable their future sustainability, support improvements to the range and quality of data available for research and earn public trust.
This workshop followed on from previous Academy work on patient data and data-driven technologies in healthcare. The Academy developed a set of principles to guide the future use of data-driven technologies in healthcare, based on a series of dialogue workshops with patients, the public and healthcare professionals.
For those unable to join on the day, a recording of the event and a summary meeting report will be published following the event. You can register your interest to receive an electronic version of the report by emailing email@example.com